3/17/2008 - Guess what? You can still participate in the AFTD-Philadelphia Soul Fundraiser even if you are unable to make the May 17th game! You may purchase tickets for any game of the season and the Soul will still donate $8/ticket to AFTD!! Email info@anevolutionoflove.com for tickets.
If you live too far away to come to the game, encourage your Philly area friends to join us...and stay tuned. More news on this fundraiser is on the way!
Robert J. Sykes, Jr was diagnosed with Frontotemporal Dementia in December 2003 at the age of 47. This rare form of Dementia is a brain disease that slowly erodes cognitive abilities and causes personality changes. He endured the disease for more than three years before succumbing on April 7, 2006. This story will provide support and inspiration to others who are coping with dementia and other irreversible illnesses.
Monday, March 17, 2008
Online FTD Community
3/17/2008 - Just a quick note to thank all of you who write to us with your stories and questions. Please keep them coming :-) We love hearing from you! If you're ever looking for a forum (really it seems more like a community!), check out http://www.ftdsupportforum.com/. There are about 500 people on the site!
Wednesday, March 12, 2008
The Philadelphia Soul football team to lend support to special "souls" affected by FTD
3/12/2008 - We're sponsoring a night with the Philadelphia Soul to benefit AFTD. We'd be honored to have you join us as we celebrate Bob's life and help raise funds to assist families living through FTD. The AFTD has recently provided the first grant for therapy research specifically for FTD. This is HUGE news!!! Let's help them support families...and find a cure! Tickets cost $23 ($8 is donated to AFTD!). Date: May 17, 2008 @ 7pm. All are welcome! Email info@anevolutionoflove.com for tickets.
Sunday, March 9, 2008
Marie & Michelle met with Patrick Murphy
3/9/2008 - Marie and Michelle, along with Catherine and Susan of the Association for Frontotemporal Dementias, met with Congressman Patrick Murphy to discuss ways to help people afflicted with Frontotemporal Dementia and their families. Congressman Murphy was presented with a copy of An Evolution of Love. A photo is posted in the Pictures link at www.anevolutionoflove.com as well as myspace.com/anevolutionoflove. Check it out!
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