Robert J. Sykes, Jr was diagnosed with Frontotemporal Dementia in December 2003 at the age of 47. This rare form of Dementia is a brain disease that slowly erodes cognitive abilities and causes personality changes. He endured the disease for more than three years before succumbing on April 7, 2006. This story will provide support and inspiration to others who are coping with dementia and other irreversible illnesses.
Friday, December 10, 2010
It's Time To Face Alzheimer's
12/10/2010 - Michelle has had a short paragraph included on Pfizer's It's Time To Face Alzheimer's website! Click on Michelle and Memory Walk teammate Shannon's photo to see their story!
Wednesday, November 3, 2010
An Evolution of Love is now a NookBook!
11/3/2010 - You may now read An Evolution of Love on your Barnes and Noble Nook! To purchase, click here!
Wednesday, October 27, 2010
On Northwestern University's FTD Book List!
10/27/2010 - The Cognitive Neurology & Alzheimer’s Disease Center of Northwestern University has added An Evolution of Love to its Frontotemporal Dementia (FTD) & Primary Progressive Aphasia (PPA) Caregiver Information and Resources list. Thanks Northwestern!
Tuesday, October 12, 2010
An Evolution of Love available in South Africa!
10/12/2010 - An Evolution of Love is now available in South Africa by clicking here!
Indie Bookstores!
10/12/2010 - If you would rather support your favorite Indie Bookstore instead of one of the larger stores, visit Indie Bound to get your copy of An Evolution of Love!
Wednesday, September 15, 2010
Please Support Biomarker Research!
9/15/2010
Dear Friends,
We are writing to ask for your help in meeting a very special challenge.
As many of you know Bob was diagnosed with Frontotemporal Dementia (FTD) at the age of 47, and passed away from the disease shortly after his 50th birthday. FTD is different from Alzheimer's Disease in that it affects behavior more than memory and typically strikes at a much younger age, when victims may still have mortgages, young children and are in the prime of their career.
Currently there is no means for accurate diagnosis of FTD, there is no approved treatment for FTD, and there is no cure for FTD. We are partnering with the Association for Frontotemporal Dementias (AFTD) and the Danis family to change that.
This fall, every $1 raised for AFTD will be matched THREE times over! Once by the Danis family in Texas and twice by the Alzheimer’s Drug Discovery Foundation. Together we will contribute a total of $160,000 to fund scientists working to identify biomarkers for FTD. Biomarkers will enable physicians to accurately diagnose FTD, and to conduct clinical trials that will lead to the first effective drugs ever for this disease.
So please, join us and give generously, so the next family that faces this rare disease will face a brighter future than we do today. Every dollar you give will result in $4 for the cause!
Thank you,
Marie Sykes and Michelle Stafford
To make a tax-deductible gift today, go to:
http://www.ftd-picks.org/about/get-involved/donate/electronically/contribute-to-biomarker-research
or
Mail your check, payable to AFTD, to:
AFTD
Radnor Station Building 2, Suite 320
290 King of Prussia Road
Radnor, PA 19087
About FTD
The frontotemporal dementias (FTD) are a group of degenerative brain disorders that inevitably deprive people of the things that we most value in our loved ones: personality, emotion, judgment, the ability to communicate. While as many as 250,000 men and women in the U.S. may be afflicted with FTD, a diagnostic test to confirm or rule out a diagnosis of this devastating disease does not yet exist. Sadly, the only means for a definitive diagnosis of FTD is post-mortem, through brain autopsy.
About Biomarkers
Biomarkers are vital to the proper diagnosis and treatment of diseases. Biomarkers such as cholesterol and blood pressure help physicians assess cardiovascular health, while biomarkers such as blood sugar help them diagnose and prescribe treatment for diabetes. Unfortunately, there are no biomarkers for FTD. However, researchers are working diligently to identify specific biomarkers such as blood tests, cerebrospinal fluid protein levels, or brain scans that would improve the ability to make an accurate diagnosis of FTD and identify potential targets for treatment.
About AFTD
The Association for Frontotemporal Dementias (AFTD) is a nonprofit organization that promotes and funds research into finding the cause, therapies, and cures for FTD. It also provides information, education and support to people diagnosed with FTD, as well as their families and caregivers. With an expanding international network of families, caregivers and healthcare professionals, AFTD is making a real difference in the lives of those living and working with FTD.
Dear Friends,
We are writing to ask for your help in meeting a very special challenge.
As many of you know Bob was diagnosed with Frontotemporal Dementia (FTD) at the age of 47, and passed away from the disease shortly after his 50th birthday. FTD is different from Alzheimer's Disease in that it affects behavior more than memory and typically strikes at a much younger age, when victims may still have mortgages, young children and are in the prime of their career.
Currently there is no means for accurate diagnosis of FTD, there is no approved treatment for FTD, and there is no cure for FTD. We are partnering with the Association for Frontotemporal Dementias (AFTD) and the Danis family to change that.
This fall, every $1 raised for AFTD will be matched THREE times over! Once by the Danis family in Texas and twice by the Alzheimer’s Drug Discovery Foundation. Together we will contribute a total of $160,000 to fund scientists working to identify biomarkers for FTD. Biomarkers will enable physicians to accurately diagnose FTD, and to conduct clinical trials that will lead to the first effective drugs ever for this disease.
So please, join us and give generously, so the next family that faces this rare disease will face a brighter future than we do today. Every dollar you give will result in $4 for the cause!
Thank you,
Marie Sykes and Michelle Stafford
To make a tax-deductible gift today, go to:
http://www.ftd-picks.org/about/get-involved/donate/electronically/contribute-to-biomarker-research
or
Mail your check, payable to AFTD, to:
AFTD
Radnor Station Building 2, Suite 320
290 King of Prussia Road
Radnor, PA 19087
About FTD
The frontotemporal dementias (FTD) are a group of degenerative brain disorders that inevitably deprive people of the things that we most value in our loved ones: personality, emotion, judgment, the ability to communicate. While as many as 250,000 men and women in the U.S. may be afflicted with FTD, a diagnostic test to confirm or rule out a diagnosis of this devastating disease does not yet exist. Sadly, the only means for a definitive diagnosis of FTD is post-mortem, through brain autopsy.
About Biomarkers
Biomarkers are vital to the proper diagnosis and treatment of diseases. Biomarkers such as cholesterol and blood pressure help physicians assess cardiovascular health, while biomarkers such as blood sugar help them diagnose and prescribe treatment for diabetes. Unfortunately, there are no biomarkers for FTD. However, researchers are working diligently to identify specific biomarkers such as blood tests, cerebrospinal fluid protein levels, or brain scans that would improve the ability to make an accurate diagnosis of FTD and identify potential targets for treatment.
About AFTD
The Association for Frontotemporal Dementias (AFTD) is a nonprofit organization that promotes and funds research into finding the cause, therapies, and cures for FTD. It also provides information, education and support to people diagnosed with FTD, as well as their families and caregivers. With an expanding international network of families, caregivers and healthcare professionals, AFTD is making a real difference in the lives of those living and working with FTD.
Thursday, August 5, 2010
Now Available on Amazon's Kindle in the UK
8/5/2010 - We are pleased to announce that An Evolution of Love is now available through the new Kindle store on amazon.co.uk. Welcome UK Kindle users!
Sunday, April 18, 2010
Free Shipping Coupon!
4/10/2010 - For a limited time, you can purchase An Evolution of Love and get free shipping! Visit our store and enter code FREEMAIL305 when you checkout to receive a $3.99 credit on your purchase. Offer ends 5/1/2010!
Kindle Apps
4/18/2010 - No Kindle? No problem! You can now download a Kindle App for your favorite device (currently includes PC, Mac, iPhone, iPod Touch, iPad, Blackberry and of course, the Kindle itself). Once you've downloaded the app, head out to Amazon and download An Evolution of Love!
Friday, April 16, 2010
Thursday, February 11, 2010
An Evolution of Love is ready for iPad!
2/11/2010 - Have you pre-ordered your Apple iPad? Great news!! An Evolution of Love is ready for iPad! Visit our 'Buy Now' link on our website and select "Purhcase from our Printer" (Lulu), it will take you to our storefront and allow you to download the epub (ebook) file directly from the site!
An Evolution of Love available on Sony Reader and iPhone!
2/11/2010 - An Evolution of Love can now be downloaded for reading on your Sony Reader and iPhone/iPod Touch! Visit our 'Buy Now' link on our website and select "Purchase from our Printer" (Lulu), it will take you to our storefront and allow you to download the ePub (ebook) file directly from the site!
Saturday, January 23, 2010
Bob's Birthday
1/23/2010 - Today would have been Bob's 54th Birthday. Marie and Michelle will be spending the day together to celebrate his memory. Thanks to all of you who have supported us in the last year!
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