Tuesday, December 15, 2009

FTD Featured on CNN!

12/15/2009 - FTD was Featured on CNN yesterday. Thanks to everyone who posted to Dr. Gupta, requesting a follow-up to his blog. Read the article and watch the video here!

Friday, December 11, 2009

FTD To Be Featured on CNN!

12/11/2009 - A note from AFTD: On Monday, December 14 CNN will broadcast a piece they have produced on FTD. We have not yet seen the piece, but are told that a 2 1/2-minute version will air first during “American Morning” between 7 – 9 am EST, then be featured in the day shows on CNN, and that a shorter version will be aired as the “Health Minute” throughout the day on CNN affiliate stations. The full piece – which runs nearly four minutes – will be consistently available through the web at CNN.com and through a link on our home page www.ftd-picks.org. The piece features the family of Kenny Sparks who was diagnosed with FTD at the age of 49, neurologist Dr. Murray Grossman, and AFTD Executive Director Susan Dickinson. We are especially grateful to Cheryl Sparks and her children, Alexandra and Graham, who have shared their personal story in this very public way. AFTD is working with additional families across the US and Canada to capitalize on the CNN story with local media coverage. The generosity of those affected by FTD to participate in awareness and research efforts holds the key to a brighter future where these disorders are concerned. Please share word of this national media attention with friends, family, colleagues and all others who are interested in the frontotemporal dementias. Together we will change the future!

Tuesday, December 1, 2009

Memory Walk 2009 Results!

12/1/2009 - Thanks to everyone who supported our team in this year's Memory Walk! Our team raised a total of $2310. We appreciate each of our walkers and everyone who so generously donated. In a time when many families are facing financial burdens and economic challenges, we are truly humbled and overwhelmed by your dedication and support.

Monday, November 9, 2009

An Evolution of Love now available as an eBook!!

11/9/2009 - As announced previously, An Evolution of Love is available on Amazon's Kindle! Do you have a device other than the Kindle? No problem! A new eBook version was released today on our website. Click on the 'Buy Now' link and then click the Lulu link.

Sunday, October 11, 2009

An Evolution of Love on YouTube!

10/11/2009 - Please visit our new YouTube channel! A permanent link will be posted on the site's next major update!

Memory Walk 2009

10/11/2009 - Hope starts with one walker and one dollar at a time. Hope starts with our team. And hope can start with you.

We are MOVING to end dementia. Please consider making a donation to this year's Memory Walk (anything is a help and greatly appreciated!) by clicking here.

Watch our Memory Walk 2009 promo video.

Thursday, September 10, 2009

Cokesbury

9/10/2009 - An Evolution of Love is now available through the Christian Resource website, Cokesbury. Check it out here!

Sunday, August 16, 2009

AboutUs.org

8/16/2009 - An Evolution of Love is now featured on AboutUs.org. Check it out! http://www.aboutus.org/AnEvolutionOfLove.com

Monday, August 10, 2009

Book available in Ireland

8/10/2009 - An Evolution of Love is now available in Ireland!! As always, it is available on our website by clicking the Buy Now link.

Monday, June 22, 2009

ALS/FTD Link

6/22/2009 - Marie and Michelle attended the 25th Annual Phillies Phestival to strike out ALS tonight. While estimates vary, according to UCSF, it is now believed that approximately 20% of ALS patients also have the signs and symptoms of frontotemporal dementia.

Friday, June 19, 2009

AFTD Annual Report

6/19/2009 - A photo of Marie and Michelle with Congressman Patrick Murphy is featured on the cover of the Association for Frontotemporal Dementias 2008 Annual Report. Thanks AFTD!

Monday, June 1, 2009

Amazon Kindle

6/1/2009 - An Evolution of Love is now available on Amazon's Kindle! Kindle is an electronic "book" of sorts that allows you to download and carry books, newspapers, magazines, etc. with you at all times. Check it out!

Wednesday, May 20, 2009

Add An Evolution of Love to your Shelfari!

5/20/2009 - Click here to add An Evolution of Love to your Virtual Bookshelf at Shelfari.com!

Wednesday, May 13, 2009

An Evolution of Love on Facebook & Twitter!

05/13/2009 - In addition to our MySpace page, please join us on our Facebook Group Page, our Facebook Fan Page...and now, as of today, follow us on Twitter!! Direct links will be added to our website soon!

Tuesday, April 28, 2009

Dr. Gupta's Blog Updated!

4/28/2009 - Many thanks to those of you who posted comments on Dr. Gupta's blog requesting that he learn more about FTD. There are currently over 50 posts!

Friday, April 24, 2009

An Evolution of Love Available in India

4/24/2009 - An Evolution of Love is now available in India! As always, it can be purchased by clicking on our 'Buy Now' link!

Thursday, April 23, 2009

Dr. Sanjay Gupta (CNN.com) mis-informed about FTD

4/23/2009 - Dr. Sanjay Gupta, a very well respected member of the medical community (you may see him on CNN or on videos in your Doctor's office) discussed Frontotemporal Dementia in his blog recently. He gave a response to a question regarding FTD by discussing Alzheimer’s disease - he did not seem to know about the diagnosis of FTD. It’s possible to post responses on the website and AFTD is encouraging people to do that.

If you've read our book, or know anything about FTD, we ask that you please comment on the blog in hopes that he retracts his response and gives voice to this horrible disease. In memory of Bob, we thank you!

Wednesday, April 22, 2009

FTD Focus Group

4/22/2009 - Marie and Michelle recently participated in a discussion with other FTD caregivers about the important issues surrounding the topic of brain donation. For more information, check out AFTD's website!

Sunday, March 29, 2009

Book Availability

3/29/2009 - An Evolution of Love is now available through Amazon's Denmark, France and Japan sites! As always, the book can be purchased directly from our website by clicking on the "Buy Now" link at the top of the page. As we approach the 3 year mark since Bob's passing, we remain grateful for the support we've received during his illness and since the book has been published. Thank you!

-Marie and Michelle

Friday, January 23, 2009

Bob's Birthday

1/23/2009 - Today would have been Bob's 53rd Birthday. Marie and Michelle have taken the day off to celebrate his memory. Thanks to everyone who has ordered a copy of An Evolution of Love this year. We've seen great strides in FTD research and assistance for families this year. We look forward to being a part of future FTD endeavors!